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Shaun 6years old
Shaun suffers with a rare genitic disorder called coffin
lowrey syndrome. For those of you who havent heard of this it causes a severe lack of mental re development, cuvature of the
spine, hearing problems and facial disfigurment. We raised the money to build Shaun a sensory room in his house to provide
some enjoyment for shaun as well as helping with his develpoment.
Steven & keegan 5years old
Steven & keegan are 5 year old twins who suffer with
autism and severe learning difficulties. Due to their challenging behaviour lack of awearness of danger they both
have to be kept under constant supervision. There mother is a single parent working full time to support her family.
We raised the funds to send them all on a well deserved holiday.
Harry 4 Years old
Harry sadly suffers with west syndrome (epilepsy) and
sometimes finds it difficult to socialize with his peers. We raised the funds to get him a specailised trike to help him socialize
with his peers and it will also help massivly with his muscle tone and fitness.
Francis 5 years old
As a new born Francis contracted meningitis which led to her
suffering from severe learning difficulties along with cerebral palsy and scoliosis. Francis responds well at eye level with
her peers so we raised £2000 to get her a standing frame in time for her to enjoy Christmas with her family.
Tommy D.o.b 08.04.1996
Tommy is the youngest of three children. He is diagnosed with severe developmental delay, is registered
blind, is wheelchair bound and has developed no speech. Tommy's mother is a single sole carer and feels that Tommy's condition
has a big impact on the other siblings as he requires so much attention. We have raised £250 to purchase a trampoline for
them to enjoy together as a family.
Sammy 3 years old
Sammy was diagnosed with leukemia, however i'm
glad to say that sammy has now been in remission for 6 months. we raised the money for sammy and her family to go to
disney land florida.
Harry
Harry is 9 years old and was recently diagnosed
with t-cell lymphoma. Thankfully Harry is at home at the moment recieving treatment with his family howerver it was becoming
very uncomfortable for him to sleep. we raised £3000 to get him a reclining chair and electronic bed to make the rest of his
time as comfortable as possile.
Queens hospital donation.
We were able to use some of our funds to donate some playstation
2 games, d.v.d.s, books, stationary and a spider man t.v to the childrens ward (tropical lagoon) at our local hospital (queens,
romford). This will help cheer up the children on the ward, some of which spend long amounts of time there.
Below is a picture of some of the children
with our grants officer lorraine. We would like to thank everyone who made this possible.
Ellie 5 Years
Ellie is now 5 but was first diagnosed with Angelmans Syndrome when she was
12 months. Ellie has been left with no speech,and can only walk short distances unaided but dose need the use of a walking
frame. Ellie is a massive fan of everything that is Disney so we sent the whole family on a well deserved all disney holiday.
( Ellie & family pictured below).
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